Hey peeps I know it’s been months!!! Call me slack, I think I’ll let you off! Well yesterday was the General Election, our chance to get a decent party in power & make some changes for the better for our little island. A chance to remove who is possibly the most despicable person to ever reside at No 10 and I despised Thatcher with every ounce of my being.
Alas it all went horribly wrong and I awoke to the depressing news that the Tories had won by a majority. Dad & I went out for coffee, in stony silence, well not really silence but not a word was said about the election outcome, not one. For sure we’d have been forcibly removed from Mark’s and Spencer’s coffee shop had we dared to even begin to discuss this topic. We drank caffeine and discussed everything else instead. If ever there was an excuse to eat cake, today was it, but I’m back on Slimming World and I stuck to my guns.
Anyway when I left you last I was in agony, a major flare & was suffering with a very nasty bout of costochondritis. My ribcage was constantly inflamed, painful to touch, the bra was tossed aside and I was about to beg my rheumy for steroids. Well I did and he gave them to me, a nice big fat dose lasting about 2 weeks, to enable me to enjoy our family holiday. He also gave me some Arcoxia to take instead of my Naproxen. If only I could live on prednisone forever, but I can’t! Anyway within a few days of taking them I felt a whole lot better and we had a fantastic holiday down in Looe, Cornwall. I even felt well enough to unpack on our return home.
Roll on to about 10 weeks ago and my costo had flared yet again. This time it was equally vicious, causing me to wake feeling as though I’d slept in a vice and every time I leaned back on the sofa I felt as though I had a large zoo animal sitting bang in the middle of my chest. Again my bra was flung aside. I struggled on with it for about 8 weeks or so, I tried doubling my anti-inflammatory med; Naproxen, then I switched out my anti for another type of anti; Arcoxia, with no relief, back to the Naproxen.
Then joy of joys come April the 8th it was time to pay a visit to my rheumy, aka Dr Dishy. I found myself feeling really breathless on the way round, despite taking a new found shortcut, and I had to stop a couple of times. When I got there I sat in the chair, nodded to the nurse that I’d arrived and tried to catch my breath. After 10 minutes I felt a little easier & that’s when the nurse decided to stick me on the evil tool that we know as a set of scales. I walked about 10 paces to the little room where the scales resided, stepped on and off again, puffing like a steam train. I just made it back to the chair and the nurse asked me in her most concerned voice, was I ok? I said yes thank you and promised to call her if I felt like I was about to flake out. It was just my chest/costo I explained and I was sure I’d be ok. So I sat there and breathed hard, it felt as though I couldn’t get enough oxygen into my lungs, it was a huge effort. I became anxious, I’ve never in my life struggled to breathe and now have a new found respect for those that suffer lung/breathing issues. I caught the nurses eye, she came right over. I told her I was feeling flaky so she grabbed the trolley and took my BP and checked my sats, which oddly enough were 100%. BP was up a tad, but I was anxious right! She got me a cup of water which I duly sipped until I was called to the Dr’s office. Again it was only about 10 paces to his room, I flopped down in the chair, struggling for breath and tried to explain to him about my chest, how bad it had been again and for how long, what I’d tried etc, all the while gasping for air. He took me to the exam room, listened to my chest for what felt like 5 full minutes, my lungs were clear. Checked my joints, blah blah. He then said we had 2 options, to either wait a little longer & see if it settled, or he could give me some more steroids. JUST GIVE ME THE PREDNISONE!!!! I didn’t actually yell that at him of course, I just politely said I’d take the steroids and see if that sorted it out, thank you very much Dr.
So he did, he wants to see me in 4 months and after I questioned what we’d likely do if the steroids didn’t work or if they did but it keeps coming back, he said that we’d have to investigate further and think about maybe some different pain relief. I walked home, slowly, my breathing was easier now but I still had this feeling of having to breath really deeply. That feeling went on for a further 2 weeks, the steroids (which were half the dose and length of course that I had last time, what is this rations??!, did absolutely nothing to relieve it. In sheer desperation one afternoon I decided to try one of my muscle relaxant meds and would you know it, within an hour I had relief!! Sheer bliss!!!
Yesterday I saw my GP to discuss my costo and the 2 meds that my Rheumy had mentioned in his follow up letter both to her and me. I told her what I’d done with the muscle relaxant, I did that for about 3 days in all, and then it settled down. Whoo bloody hoo!! I told her I wasn’t the least happy about either of the meds he’s suggested, Gabapentin or Lyrica and asked her if she’d be happy if I continued to use the muscle relaxant, Amitriptyline if it flared up badly again. She said that was totally fine, it clearly worked for me and she was in agreement on my feelings over the other meds.
So that’s that. If you got that far you deserve a medal!! And I can’t think of anything else really exciting to share, but I will have soon I’m sure. Until then I will try and keep my chin up despite the Tory rule, I won’t let the buggers pull me down however hard they may try. “Bugger I forgot me tea, it’s gone cold as I typed!” I may have some decorating posts before too much longer as I plan to organise decoration of the 3 bedrooms so that’ll keep me out of trouble for a while. I’m currently in the planning stages so I best get back to that.
See ya xxx